Accessibility

Dr. Portnova featured on NIDILRR podcast

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Dr. Alexandra (Sasha) Portnova-Fahreeva was featured on Episode 19 of Spotlight, a podcast for the National Rehabilitation Information Center (NARIC), a federally-funded library focused on disability, independent living, and rehabilitation research.

In this episode, Jess Chaiken speaks with Dr. Sasha Portnova about Dr. Portnova’s experiences as a NIDILRR-funded fellow, her work in rehabilitation research, and the inspiration behind her podcast, Gears of Progress. They discuss the importance of scientific communication, mentorship, and the future of research in assistive technology.

Listen to the podcast on Spotify!

KA Ingraham, HA Feldner, KM Steele (2024) “An Instrumented ‘Explorer Mini’ for Quantitative Analysis of Toddlers Using Powered Mobility for Exploratory, Mobile, and Digital Play”

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Journal Article in the 10th IEEE RAS EMBS Intl. Conference on Biomedical Robotics and Biomechatronics (BioRob).

For toddlers with disabilities, assistive technologies can enable developmentally appropriate exploration, play, and participation, but little is known about how children interact with accessible interfaces, such as joysticks.

The instrumented explorer mini measures joystick position, wheel rotations, and bodyweight loading at 100 Hz. Representative raw data collected from the device are shown here for 100 seconds.Aim: The Permobil Explorer Mini is currently the only commercially available, FDA-cleared pediatric powered mobility device in the United States designed for children ages 12–36 months. In this paper, we present an instrumented Explorer Mini that enables us to quantitatively analyze how young children with disabilities learn to use and interact with joystick-based technology.

Methods: We discuss preliminary results from two studies conducted with two toddlers with motor disabilities using the instrumented Explorer Mini in different contexts: 1) during exploratory mobile play (i.e., driving) and 2) during interactive digital play (i.e., playing a simple computer game).

Results: In the first study, we found that, for a given 15–20 minute play session, participants drove between 11.3 and 65.6 m, and engaged with the joystick between 53 and 165 times. In the second study, we found that children could use the joystick to play a simple cause-and-effect computer game, but that they disproportionately used the ‘forward’ direction of the joystick, regardless of the direction of the displayed target.

Interpretation: The novel experimental platform, research framework, and preliminary data presented in this paper lay the foundation to study how children with disabilities learn to use and interact with joystick-based assistive technologies. This knowledge is critical to inform the design and advancement of developmentally appropriate technologies that equitably support toddlers in exploration, mobility, and play.

NL Zaino, KA Ingraham, ME Hoffman, HA Feldner, KM Steele (2024) “Quantifying toddler exploration in different postures with powered mobility”

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Journal Article in Assistive Technology

Access to powered mobility can support play and development for toddlers with disabilities. Using powered mobility in a standing posture has been theorized to support development of muscle coordination, balance, head and trunk stability, and transition to ambulation.

3 graphs showing the number of joystick activations, longest joystick activation, and loading through the base over the 13% bodyweight threshold in each play session for each participant for both SIT (left, open) and STAND (right, filled).

Aim: The purpose of this study was to quantify and characterize joystick control, bodyweight support, and muscle activity while using the Permobil Explorer Mini in seated and supported standing postures.

Methods: Nine children with mobility disabilities participated in four visits where they completed two, 15–20 minute play sessions, one in each posture, with a break between.

Results: We found that all toddlers engaged with the joystick in both postures, with individual differences in favored directions and control patterns. Participants had similar loading through their feet in both postures, but had slightly higher muscle activity in standing, especially while driving.

Interpretation: These results demonstrate that young children with disabilities quickly engage with joystick-based powered mobility in seated and standing postures, with important individual differences that can inform future design of devices and interventions to support play and development.

Riley Bernas presents at the CNT 2024 Summer Undergraduate Research Symposium

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This summer, the Steele Lab hosted undergraduate researcher, Riley Bernas, from the University of Connecticut. Riley was mentored by Mia Hoffman, Heather Feldner, and Kat Steele.

She finished up her 10-week summer Research Experience for Undergraduate (REU) by presenting at the 2024 Summer Undergraduate Research Symposium with the Center for Neurotechnology (CNT).

Riley gave a podium and poster presentation titled “Quantifying low-cost switch access play-kit usage in clinical settings: A first glance.“

Way to go, Riley!

KM Steele (2023) After Universal Design Book Chapter – “Shaping Inclusive and Equitable Makerspaces”

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Book Chapter in After Universal Design: The Disability Design Revolution, Edited by Elizabeth Guffey

“Makerspaces are often used to help build new assistive technology and increase accessibility; however, many of these spaces and tools remain inaccessible. We need to make sure disabled people can access these spaces and create the products and designs that they actually want.”
– DO-IT Scholar

Dr. Steele was asked to contribute a case study focused on her work with AccessEngineering into Shaping Inclusive and Equitable Makerspaces.

Description: How might we develop products made with and by disabled users rather than for them? Could we change living and working spaces to make them accessible rather than designing products that “fix” disabilities? How can we grow our capabilities to make designs more “bespoke” to each individual? After Universal Design brings together scholars, practitioners, and disabled users and makers to consider these questions and to argue for the necessity of a new user-centered design.

As many YouTube videos demonstrate, disabled designers are not only fulfilling the grand promises of DIY design but are also questioning what constitutes meaningful design itself. By forcing a rethink of the top-down professionalized practice of Universal Design, which has dominated thinking and practice around design for disability for decades, this book models what inclusive design and social justice can look like as activism, academic research, and everyday life practices today.

With chapters, case studies, and interviews exploring questions of design and personal agency, hardware and spaces, the experiences of prosthetics’ users, conventional hearing aid devices designed to suit personal style, and ways of facilitating pain self-reporting, these essays expand our understanding of what counts as design by offering alternative narratives about creativity and making. Using critical perspectives on disability, race, and gender, this book allow us to understand how design often works in the real world and challenges us to rethink ideas of “inclusion” in design.