NL Zaino, M Yamagami, DJ Gaebler-Spira, KM Steele, KF Bjornson, HA Feldner (2022) “‘That’s frustrating’: Perceptions of ankle foot orthosis provision, use, and needs among people with cerebral palsy and caregivers”

Yusuke Maruo JournalArticle, News, Publications January 24, 2023February 23, 2024Accessibility, AFO, Cerebral Palsy, Orthosis

Journal Article in Prosthetics and Orthotics International:

This research provides insights into the lived experiences of individuals with CP and their caregivers regarding the process of obtaining and using an AFO. Further opportunities exist to support function and participation of people with CP by streamlining AFO provision processes, creating educational materials, and improving AFO design for comfort and ease of use.

Aim: The study objective was to evaluate the lived experiences of individuals with CP and their caregivers regarding AFO access, use, and priorities. We examined experiences around the perceived purpose of AFOs, provision process, current barriers to use, and ideas for future AFO design.

Method: Secondary data analysis was performed on semistructured focus groups that included 68 individuals with CP and 74 caregivers. Of the focus group participants, 66 mentioned AFOs (16 individuals with CP and 50 caregivers). De-identified transcripts were analyzed using inductive coding, and the codes were consolidated into themes.

Results: Four themes emerged: 1) AFO provision is a confusing and lengthy process, 2) participants want more information during AFO provision, 3) AFOs are uncomfortable and difficult to use, and 4) AFOs can benefit mobility and independence. Caregivers and individuals with CP recommended ideas such as 3D printing orthoses and education for caregivers on design choices to improve AFO design and provision.

Interpretation: Individuals with CP and their caregivers found the AFO provision process frustrating but highlight that AFOs support mobility and participation. Further opportunities exist to support function and participation of people with CP by streamlining AFO provision processes, creating educational materials, and improving AFO design for comfort and ease of use.

M Yamagami, K Mack, JC Mankoff, KM Steele (2022) “’I’m Just Overwhelmed’: Investigating Physical Therapy Accessibility and Technology Interventions for People with Disabilities and/or Chronic Conditions”

Katie JournalArticle, News, Publications October 22, 2022June 11, 2024Accessibility, Universal Design

Journal Article in ACM Transactions on Accessible Computing

Many individuals with disabilities and/or chronic conditions (da/cc) experience symptoms that may require intermittent or on-going medical care. However, healthcare is an often-overlooked domain for accessibility work, where access needs associated with temporary and long-term disability must be addressed to increase the utility of physical and digital interactions with healthcare workers and spaces.

Aim: Our work focuses on a specific domain of healthcare often used by individuals with da/cc: physical therapy (PT).

Methods: Through a 12-person interview study, we examined how people’s access to PT for their da/cc is hampered by social (e.g., physically visiting a PT clinic) and physiological (e.g., chronic pain) barriers, and how technology could improve PT access.

Results: In-person PT is often inaccessible to our participants due to lack of transportation and insufficient insurance coverage. As such, many of our participants relied on at-home PT to manage their da/cc symptoms and work towards PT goals. Participants felt that PT barriers, such as having particularly bad symptoms or feeling short on time, could be addressed with well-designed technology that flexibly adapts to the person’s dynamically changing needs while supporting their PT goals.

Interpretation: We introduce core design principles (adaptability, movement tracking, community building) and tensions (insurance) to consider when developing technology to support PT access. Rethinking da/cc access to PT from a lens that includes social and physiological barriers presents opportunities to integrate accessibility and adaptability into PT technology.

Kat Steele on BOOM talking mobility, accessibility, and design

Elijah Media, News May 20, 2021October 12, 2021AccessEngineering, Accessibility, inclusive design, mobility, podcast

BOOM! Kat Steele was recently a guest speaker on the fantastic podcast BOOM: Biomechanics On Our Minds hosted by Melissa Boswell and Hannah O’Day. Kat joined BOOM for their first episode of a four-part series discussing mobility, accessibility, and design.

Definitely give this episode a listen on SoundCloud, Spotify, or Apple Podcast, and follow along with the rest of the four-part series and all great BOOM content on the same podcast services.

boom. Boom. BOOM!

NSF Convergence Accelerator | Inclusion in the Workplace

Dr. Steele AccessEngineering, Presentation May 18, 2021October 12, 2021AccessEngineering, Accessibility, CREATE, Presentation, Universal Design

The NSF Convergence Accelerator on Accelerating Disability Inclusion in Workplaces through Technology starts on May 20th.

The goals for this workshop are to identify pathways for technology to solve or mitigate accessibility and inclusion challenges in current and emerging workplaces. As an NSF Convergence Accelerator, participants will seek to identify pathways that could be pursued by multidisciplinary teams to get solutions at least to a prototype stage in 3-5 years. The long-term goals from this workshop are to set in motion paradigm shifts that brings the percentage of individuals with disabilities participating in the workforce closer to the general population.

Dr. Steele will be presenting some ideas on inclusion in the workplace – from work environments to transportation to workforce development.

Slides

Download PDF of slides.

Email Dr. Steele (kmsteele – at – uw – dot – edu) with questions, comments, or suggestions.

Kat Steele named a 2020 DO‑IT Trailblazer

Elijah AccessEngineering, Awards January 12, 2021October 12, 2021AccessEngineering, Accessibility, CREATE

We are proud to announce that Dr. Katherine M. Steele was selected as one of the 2020 DO-IT Trailblazers for her fantastic work in access engineering. Kat has been active in DO-IT, hosting activities where students learn about makerspace accessibility, engineering principles, and universal design. She has also developed resources and published articles with DO-IT staff on topics related to makerspace accessibility and teaching about accessibility in engineering. Please help us in congratulating Kat!