NL Zaino, Z McKee, CD Caskey, KM Steele, HA Feldner (2024) “Perceptions and experiences of first mobility aid provision for young children with cerebral palsy in the United States: a mixed-methods study”

Journal Article in Disability and Rehabilitation: Assistive Technology 

This research provides insights into the lived experiences of clinicians and caregivers of young children with CP regarding the prescription, provision, use and impact of first mobility aids, specifically ankle foot orthoses and walkers/gait trainers.

Caregiver views of impact of first orthoses (n = 8) and walkers (n = 4). Proportional bar graph depicting caregiver perceptions on the impacts of their child’s ankle foot orthoses and/or walkers on various activities.Aim: The purpose of this study was to establish and understand the provision process and impacts of first mobility aids for children with cerebral palsy (CP) in the United States – specifically orthoses, walkers and gait-trainers.

Methods: We performed a mixed-methods study including surveys and semi-structured interviews of caregivers of young children with CP (n = 10) and clinicians who work with young children with CP (n = 29). We used content analysis for the surveys and inductive coding for the interviews.

Results: Four themes emerged: (1) first mobility aids have mixed impacts and use patterns, (2) there is varied caregiver education and understanding about mobility aids, (3) clinician knowledge, consistency and connection impact care and (4) numerous access barriers exist for families, and there are still opportunities for improvement across all domains.

Interpretation: This study not only provides researchers and clinicians with an understanding of the current status of the prescription and provision process in the United States, but also offers suggestions for improvements of the process and mobility aids themselves. These results have implications for future research, mobility aid, design and the provision process of first mobility aids.

Charlotte Caskey on “Gears of Progress” Podcast

Gears of Progress Episode Three featured Charlotte Caskey on spinal stimulation in children with cerebral Palsy, fancy neuroscience, and balance between clinical research and real world. Charlotte has long brown hair. She is wearing glasses and a cozy scarf.

“Gears of Progress” Episode Three featured Charlotte Caskey on spinal stimulation in children with cerebral Palsy, fancy neuroscience, and balance between clinical research and real world.

Gears of Progress Logo with three gears featuring assistive devicesName: Gears of Progress

PlatformsSpotifyApple PodcastsAmazon MusicCastbox

Release frequency: bi-weekly on Fridays

Theme: Podcast about research and innovations in rehabilitation engineering and assistive technologies aimed to improve accessibility for people with disabilities. Every episode will feature engineers, medical professionals, end-users, and organizations who focus on improving the health and well-being of individuals with disabilities. We will be covering topics such as emerging tech, outcome measures, medical practice, public policy, accessibility education, and so much more!

Twitterhttps://twitter.com/GearsOfProgress

Mia Hoffman on “Gears of Progress” Podcast

Gears of Progress Episode Two featuring Mia Hoffman on early childhood mobility, young kids as participants, and accessibility of research for people with disabilities.

“Gears of Progress” Episode Two featured Mia Hoffman on early childhood mobility, young kids as participants, and accessibility of research for people with disabilities.

Gears of Progress Logo with three gears featuring assistive devices

Name: Gears of Progress

Platforms: Spotify, Apple Podcasts, Amazon Music, Castbox

Release frequency: bi-weekly on Fridays

Theme: Podcast about research and innovations in rehabilitation engineering and assistive technologies aimed to improve accessibility for people with disabilities. Every episode will feature engineers, medical professionals, end-users, and organizations who focus on improving the health and well-being of individuals with disabilities. We will be covering topics such as emerging tech, outcome measures, medical practice, public policy, accessibility education, and so much more!

Twitterhttps://twitter.com/GearsOfProgress

AM Spomer, BC Conner, MH Schwartz, ZF Lerner, KM Steele (2023) “Audiovisual biofeedback amplifies plantarflexor adaptation during walking among children with cerebral palsy”

Journal Article in Journal of NeuroEngineering and Rehabilitation

Biofeedback is a promising noninvasive strategy to enhance gait training among individuals with cerebral palsy (CP). Commonly, biofeedback systems are designed to guide movement correction using audio, visual, or sensorimotor (i.e., tactile or proprioceptive) cues, each of which has demonstrated measurable success in CP.

Figure 1. Experimental Protocol. Audiovisual (AV) biofeedback on soleus activity was provided for the more-affected limb alongside an auto-adjusting target score. Sensorimotor (SM) biofeedback was provided for the more-affected limb using an untethered ankle exoskeleton designed to impart a resistive ankle torque through stance, proportional to baseline values. Participants completed three data collection visits (pre-acclimation, post-acclimation, and follow-up), during which they walked with both biofeedback systems independently and in combination. Trials were pseudo-randomized within and between visits to ensure that feedback modalities were presented to each participant in a different order and control for fatigue and learning effects. Each trial was 10 min long and separated into baseline, feedback, and washout phases. All data analysis was performed for early (strides 1–30), mid (strides 91–110), and late (strides 181–210) feedback phases and washout (strides 1–30). Mean soleus activity for individual strides (purple dots) was normalized to baseline activity. Between the pre-acclimation and post-acclimation visits, participants completed four, 20-min acclimation sessions where they received additional practice with both systems

Aim: The aim of this study is to evaluate how the modality of biofeedback may influence user response which has significant implications if systems are to be consistently adopted into clinical care.

Method: In this study, we evaluated the extent to which adolescents with CP (7M/1F; 14 [12.5,15.5] years) adapted their gait patterns during treadmill walking (6 min/modality) with audiovisual (AV), sensorimotor (SM), and combined AV + SM biofeedback before and after four acclimation sessions (20 min/session) and at a two-week follow-up. Both biofeedback systems were designed to target plantarflexor activity on the more-affected limb, as these muscles are commonly impaired in CP and impact walking function. SM biofeedback was administered using a resistive ankle exoskeleton and AV biofeedback displayed soleus activity from electromyography recordings during gait. At every visit, we measured the time-course response to each biofeedback modality to understand how the rate and magnitude of gait adaptation differed between modalities and following acclimation.

Results: Participants significantly increased soleus activity from baseline using AV + SM (42.8% [15.1, 59.6]), AV (28.5% [19.2, 58.5]), and SM (10.3% [3.2, 15.2]) biofeedback, but the rate of soleus adaptation was faster using AV + SM biofeedback than either modality alone. Further, SM-only biofeedback produced small initial increases in plantarflexor activity, but these responses were transient within and across sessions (p > 0.11). Following multi-session acclimation and at the two-week follow-up, responses to AV and AV + SM biofeedback were maintained.

Interpretation: This study demonstrated that AV biofeedback was critical to increase plantarflexor engagement during walking, but that combining AV and SM modalities further amplified the rate of gait adaptation. Beyond improving our understanding of how individuals may differentially prioritize distinct forms of afferent information, outcomes from this study may inform the design and selection of biofeedback systems for use in clinical care.

ME Hoffman, KM Steele, JE Froehlich, KN Winfree, HA Feldner (2023) “Off to the park: a geospatial investigation of adapted ride-on car usage”

Journal Article in Disability & Rehabilitation: Assistive Technology:

The accessibility of the built environment is an important factor to consider when providing a mobility device to a young child and their family to use in the community.

Figure 8. The accessibility scores for the sidewalks near each Participant’s (P5, P10, P17) home on the left and the drive path of the participant on the right. Participants generally avoided driving on streets that were not accessible.

Aim: To quantify the driving patterns of children using an adapted ride-on car in their home and community environment over the course of a year using an integrated datalogger.

Method: Fourteen children (2.5 ± 1.45 years old, 8 male: 6 female) used adapted ride-on cars outside and inside of their homes over the course of a year. We tracked their device use metrics with a custom datalogger and geospatial data. To measure environmental accessibility, we used the AccessScore from Project Sidewalk, an open-source accessibility mapping initiative, and the Walk Score, a measure of neighborhood pedestrian-friendliness.

Results: More play sessions took place indoors, within the participants’ homes. However, when the adapted ride-on cars were used outside the home, children engaged in longer play sessions, actively drove for a larger portion of the session, and covered greater distances. Most children tended to drive their ROCs in close proximity to their homes. Most notably, we found that children drove more in pedestrian-friendly neighborhoods and when in proximity to accessible paths.

Interpretation: The accessibility of the built environment is paramount when providing any form of mobility device to a child. Providing an accessible place for a child to move, play, and explore is critical in helping a child and family adopt the mobility device into their daily life.